Help me, I got New kind of diease from printer ink desyroyed my bone marrow. ATTN:All worlds blood specialist?
have been suffering with Myelodysplastic Syndromes since 2001, it started with
tiredness, dizziness and shortness of breath. The lowest blood counts are
the hemoglobin and red cells, the hemoglobin range from 6.0 to 9.5,
and the red cells range from 2.0 to 2.45.
The normal value for Hemoglobin is 14.0-10.0 g/dl, the normal red cells are 4.30-5.90 M/cu mm.
Myelodysplastic syndromes affect blood cell production and behavior. Blood carries oxygen, chemicals and hormones to the cells in the body and helps remove toxins and waste.
Red blood cells carry oxygen to the tissues (muscles, bones, nerves and organs). Low red blood counts or malfunctioning red blood cells can cause anemia. Symptoms are paleness, feeling tired, fast-beating or pounding heart, dizziness, shortness of breath or headaches.
The five categories of MDS are:
Refractory anemia
Refractory anemia with ringed sideroblasts
Refractory anemia with excess blasts
Refractory anemia in transformation to acute leukemia
Chronic myelomonocytic leukemia
The disease categories on the lower end of this list are more serious and have a worse prognosis than those at the top. Refractory anemia and refractory anemia with ringed sideroblasts primarily affect the red blood cells and are the most common forms of MDS. Refractory anemia with excess blasts is present when immature white blood cells are found in the bone marrow in abnormally large numbers (five to 20% bone marrow blasts, compared to normal blasts of less than one percent). Refractory anemia with excess blasts in transformation occurs when blasts become markedly increased (more than 20%) and may indicate that MDS will change to an acute form of leukemia.
The category that I come under is Refractory Anemia.
MDS is difficult to diagnose because of the absence of symptoms in the early stage of the disease. Often it is accidentally discovered during a routine physical exam or blood test. Routine screening tests do not exist for MDS, but if the disease is suspected, the doctor may order these tests:
Complete blood count. A small amount of blood is drawn from the arm, and the lab measures red blood cells, white blood cells and platelets in the sample.
Bone marrow biopsy
An examination of the chromosomes that carry genetic material
I get the complete blood count done every week and receive blood transfusion
once every three weeks or earlier sometimes. Medicines such as Procrit,
Arenesp, Epogen has no effect on me. Revlimid and other similar drugs
do not help either. Presently I am given Chemotherapy (Vidaza) for the past 12 months and there has been no positive results so far.
Actually it was my friend who has this disease and he reported to me that he used to sit in a Lucent Technology printer room and the ink particles in the air got in his blood stream through inhelation. Originally that was the diagnosis from doctors hardly any one survive this disease. In his case 20% of baby blood cells produced by bone marrow were dead and appeared black under microscope. One of the worlds greatest doctor is treating him with Chemotherapy and seems like symptoms has somewhat different now. Now it is some kind of severe anemia however he has extra iron in his blood. He took some experimental drug to cure above disease which seems to cause neuropathy at the bottom of his feet which is very painful. So far that has no cure for that side effect also available.
Actually it was my friend who has this disease and he reported to me that he used to sit in a Lucent Technology printer room and the ink particles in the air got in his blood stream through inhelation. Originally that was the diagnosis from doctors hardly any one survive this disease. In his case 20% of baby blood cells produced by bone marrow were dead and appeared black under microscope. One of the worlds greatest doctor is treating him with Chemotherapy and seems like symptoms has somewhat different now. Now it is some kind of severe anemia however he has extra iron in his blood. He took some experimental drug to cure above disease which seems to cause neuropathy at the bottom of his feet which is very painful. So far that has no cure for that side effect also available.
- liz down under
You have no choice but to keep having blood transfusions and be monitored for any progression of your disease. I don't know of any links between MDS and printer ink. What makes you think that has caused it?
Leukemia — Comprehensive overview covers symptoms, causes, risk factors, treatment of this blood-related cancer.
Orignal From: Help me, I got New kind of diease from printer ink desyroyed my bone marrow. ATTN:All worlds blood specialist?
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