5/9/11

Okay I need help with leukemia info....?


Okay I need help with leukemia info....?
Okay when the doctors tell you that you been diagnosed with leukemia what do they tell you (I'm writing a story about a teen leukemia patient it's a project I want to do. for Writing Club) so what do they tell you that they found something odd in your cells? Any help? I have all the other info symptoms and everything I just need help with this...
Also, sorry, but can you tell me about acute myelogenous leukemia chemotherapy in teenagers. Like what happens in there? I know and have heard it hurts. Are you tired? Loss of appearance?

- Buddy
they say im very sorry your child has been diagnosed with leukemia and the symptoms you had were bruising red around the mouth and swelling

- Michele
ha yeah the doctor don't tell you that. i got diagosed w/ aml in july at age 18, so from personal experience before i went to the doctor, i was really pale, got tired very easily, would get real dizzy in the heat,& threw up all the time. when i got my diagnoses i got blood transfusion immediatly & was sent off in an ambulance the next morning to a hospital that specializes in cancer. i went through 2 weeks of chemo. got 3 different chemo drugs. during chemo i was fine...it was afterwards that was hell. i was nauseas all the time...my hair started falling out a week later. i shaved my head. i would get bone marrow biopsys & spinal taps. a few weeks later i would go through more chemo. & it was the same thing over again. i just turned 19 & will be getting more chemo in a few days. hope this helps! email me for more info :)

- J.S.
My 2 1/2 year old son E was diagnosed with a Wilms' Tumour as a newborn, won his battle, and was recently diagnosed with Secondary Acute Myelogenous Leukemia (AML). His cancer is most likely a secondary cancer caused by the chemotherapy his first time when he fought Wilms. E somehow passed his screenings he has every 3 months back in October but in the end of November we started to notice he wasn't quite himself, and he was diagnosed December 19th.

There are lots of symptoms of leukemia but each individual is different. Some display some symptoms while others display other ones. There's no actual tumour as in other cancers but leukemia is a cancer of the cells that create blood cells. E had a cold in November that he just couldn't kick. We took him to the doctor and he was given an antibiotic. We were also told that he was anemic so he was given an iron supplement. He got a little better but as soon as he finished the antibiotic he got sick again. He usually has a couple bruises here and there since he is a 2 year old. His walking was greatly affected from one of the drugs in his first chemo cocktail so he trips and falls pretty often. But the bruising he had was more than usual - he bruised at the slightest bump. That's when we really knew something was wrong and took him to the doctor again. He was admitted while his bloodwork was running so he could be hydrated since he refused to eat or drink. His oncologist came to talk to my wife and I and told us that his counts were way off normal, we knew he was at risk for developing a secondary cancer but didn't think it would really happen to him. His oncologist said there were some leukemic-looking cells in his CBC and that a bone marrow biopsy would confirm a diagnosis.

Once he was diagnosed we found out that his spleen and liver were enlarged - also symptoms of leukemia. Due to the extent of enlargement of his spleen, he had it removed after a round of chemotherapy. So far he has had 3 strong doses of induction chemo and 3 consolidation rounds, he was given another 2 strong doses of chemo due to a tumour in his liver that was removed last month and typed as a new cancer - a Hepatoblastoma. He just finished his 3rd round of that Friday. He does stay in the hospital during his chemo. His chemo lasts 7 days and he usually stays for up to 2 weeks. He will also have a bone marrow transplant when a donor becomes available. The chances of relapse with AML are pretty high. Since this is his second time fighting cancer he is considered at a greater risk for relapse so the bone marrow transplant is the best choice for him.

He had some joint pain at the time of diagnosis. I have to say I didn't really think too much of the joint pain because he doesn't walk well due to one of the previous chemotherapy drugs he had - Vincristine. Because of Vincristine his leg muscles are weaker and he walks with "slapfoot" or "dropfoot" and he trips and falls fairly often. I figured his joint pain was because of falling but since his diagnosis I now see that it was probably because of the leukemia. On treatment he has had a significant amount of bone and joint pain, especially early on. When it's clear that he is in pain, he does get pain meds to help. I think the painkillers do help him but I think even then he does have some pain but duller than without painkillers.

There are often delays due to low counts or infection. Delays are to be expected and thankfully E has only had his chemo delayed once due to low counts. He receives other medications before, during, and after chemo doses in order to combat the side effects. He usually takes Zofran (has also taken Ativan or Kytril but most often Zofran) to help with the nausea and vomiting caused by several of the drugs in his chemo cocktail. He also takes various pain killers to help with the bone pain he experiences. He has had several blood transfusions when his counts get too low - blood products can come from anyone as long as they have a compatible blood type.

I think I'm about out of room here and I hope this helped you out some. If you have any more questions feel free to email me (crazycanuckj@yahoo.ca) or IM me (crazycanuckj).

Add your own answer in the comments! Leukemia Problems Remedies | FIGHT CANCER INFO
Leukemia — Comprehensive overview covers symptoms, causes, risk factors, treatment of this blood-related cancer.



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