Is it wrong that i'm scared to have her at home?
I've posted this in two categories, the parenting one and the cancer forum, because i wasn't sure what forum would be best.
I have an 8 year old daughter fighting leukemia, and on wednesday she'll be starting a new trail to get it back into remission. The trial involves two different chemo drugs, and a far less intense treatment. For the last year especially, she's almost always been an in-patient at the hospital, due to the strengh of the chemo she was receiving, and it's been a small comfort to know she's in the best possible place in case of anything urgent happening.
Today we were told that, unless she reacts badly to the treatment, we should start preparing to bring her home in the coming months, and she will continue her treatment as an out-patient most of the time. After the initial joy that she'll be able to lead a more normal life; i've realized that i am really quite worried about having her home. She has several tablets she needs to take and what if i mess those up? Looking at her today, i can't see how she'd be able to cope at home, here she has every facility and hundreds of friends to encourage her.
My wife's practically bouncing off the walls, and i feel guilty as hell for thinking it, but i'm really not sure i want to take her from the security of this hospital.
- Sunshine
I completely understand why you are feeling like this, I would feel the same way. The hospital feels safe. I have just a small amount of experience with this personaly, but not as a parent (my daughter has never been in the hospital, except for birth but i even felt the same way then!), however I am going to school for occupational therapy and am starting to see how many parents feel this way. Its scary, especially when your child has been so sick. I think your daughter will do fine, she will be more comfortable at home, her friends can come visit her, she will have plenty of encouragement from you and her friends. I'm sure, if it makes you feel better, you caould get a nurse to administer medication until you are comfortable with it. Best of luck to you and your family for a speedy, healthy outcome.
- kitty
no your not wrong i cant imagine how you feel but i would be scared to keep your head up dont show her your fear keep a smile on for her and be strong even though it hurts do it for her god bless yall ill keep her in my prayers i hope and pray everything turns out good
Dont give up hope God Bless
- Halor
Never feel guilty for wanting what is best for your child. She is in a place that can take care of her if anything happens, that is a great amount of peace of mind for all concerned. When she is well enough to come home it will be a blessing that you are all together again. As long as you are careful about her treatment all of you should be fine. I'm happy for you all that she is getting better.
- Flusterated
First of all, I am so sorry that you and your family have to go through such a thing! You have every right to feel the way you do - you are scared, both for your little girl and for yourselves should anything happen while she's at home - that's perfectly normal. What you need to keep in your mind though is that your little girl NEEDS to be home with her parents to feel more "normal" - it's not normal for a child to have such a horrendous disease, and it's certainly not normal to live in a hospital. For her treatment to be 100% effective, she should feel as positive about the outcome as possible, and being home would be a lot better for her emotional health than being in a hospital bed surrounded by strangers (not to mention sick people and germs) - especially this time of year! Please join a support group for parents of sick children - I'm sure your hospital social workers can refer you to one. Good luck and make this the best Christmas ever for your little girl!!
- Thumbellina
stop thinking about YOU and your fears
She doesnt want to be in a hospital
You should be her biggest supporter
not kids in a hospital
not docters who are paid to be kind
her parents..thats why youre there
Be strong for her
Leukemia — Comprehensive overview covers symptoms, causes, risk factors, treatment of this blood-related cancer.
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