Leukemia or lymphoma Bone Pain?
Anyone had any experience with leukemia or lymphoma bone pain?
Is it spread out and all over, or just in one spot??
Stabbing, or just a constant strange pain never before experienced?
would you describe it as the worst pain you've ever experienced?
does it happen worse at night , to begin with and then get more often throughout the day worse as the disease progresses?
- knittinmama
I didn't have leukemia of lymphoma bone pain but I did have bone pain as a side effect of getting neupogin injections while being treated for breast cancer. I could best describe the pain as having a migraine in the small of my back. It would keep me up some nights rocking and pacing until the tylenol kicked in to relieve the pain. I only experienced it a couple of times and it wasn't fun
- J.S.
My son E was diagnosed with a Wilms' Tumour as a newborn, won his battle, and was recently diagnosed with Secondary Acute Myelogenous Leukemia (AML). AML is related to ALL but is still quite different. His cancer is most likely a secondary cancer caused by the chemotherapy his first time when he fought Wilms. E somehow passed his screenings he has every 3 months back in October but in the end of November we started to notice he wasn't quite himself, and he was diagnosed December 19th.
He had some joint pain at the time of diagnosis. I have to say I didn't really think too much of the joint pain because he doesn't walk well due to one of the previous chemotherapy drugs he had - Vincristine. Because of Vincristine his leg muscles are weaker and he walks with "slapfoot" or "dropfoot" and he trips and falls fairly often. I figured his joint pain was because of falling but since his diagnosis I now see that it was probably because of the leukemia. On treatment he has had a significant amount of bone and joint pain, especially early on. When it's clear that he is in pain, he does get pain meds to help. I think the painkillers do help him but I think even then he does have some pain but duller than without painkillers.
The bone pain he experienced before he was diagnosed was most likely due to the overcrowding of bone marrow in the bones. This is caused by the bone marrow reproducing uncontrolled - being cancerous. The chemotherapy cocktail he is given is targeted at the bone marrow to kill the cancerous cells there. Because he is given so many different drugs and steroids, I don't really know what causes the pain. The worst for him is when the pain meds are wearing off and it's not quite time for him to have more. His doctors and nurses refer to this as breakthrough pain.
Since I'm not the one physically experiencing his pain, I can't say what the pain feels like. And he's only 2 1/2 years old so his vocabulary is limited compared to yours and mine. He knows when he hurts but he can't really voice how bad he hurts. I have heard, however, that bone pain is the worst type of pain there is. I imagine it feels somewhat like a broken bone only all over the body.
I hope this helped you out some. If you have any more questions feel free to email me (crazycanuckj@yahoo.ca) or IM me (crazycanuckj).
Leukemia — Comprehensive overview covers symptoms, causes, risk factors, treatment of this blood-related cancer.
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